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Possibility of treatment for Metachromatic Leucodystropy by Homeopathic medicines?

Possibility of treatment for Metachromatic Leucodystropy by Homeopathic medicines? Topic: Rega research
June 16, 2019 / By Benton
Question: My 3 daughers were born normal. At the age of 5 degenerative disease discovered and diagnosed as Metachromatic Leucodystrophy and now they are handicapped. Still I am trying to explore the possibility of treatment. If further details are needed I have complete summary and can be sent who wants to help us. I will be greatful for any kind of help or guidance extended.
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Best Answers: Possibility of treatment for Metachromatic Leucodystropy by Homeopathic medicines?

Abijah Abijah | 7 days ago
Dear Mom of Angels, This site has a great deal of information and links to other sites. I am looking for clinical trials and will update you accordingly. Just email me so I can contact you. I have a terminal disease with no cure either. Its pulmonary hypertension or high blood pressure in my lungs. Prognosis: Sure death by slow suffocation. So, I know the pain you're in. Here is the info I found: What is Metachromatic Leukodystrophy? Metachromatic leukodystrophy (MLD) is one of a group of genetic disorders called the leukodystrophies. These diseases impair the growth or development of the myelin sheath, the fatty covering that acts as an insulator around nerve fibers. Myelin, which lends its color to the white matter of the brain, is a complex substance made up of at least 10 different enzymes. The leukodystrophies are caused by genetic defects in how myelin produces or metabolizes these enzymes. Each of the leukodystrophies is the result of a defect in the gene that controls one (and only one) of the enzymes. MLD is caused by a deficiency of the enzyme arylsulfatase A. MLD is one of several lipid storage diseases, which result in the toxic buildup of fatty materials (lipids) in cells in the nervous system, liver, and kidneys. There are three forms of MLD: late infantile, juvenile, and adult. In the late infantile form, which is the most common MLD, affected children have difficulty walking after the first year of life. Symptoms include muscle wasting and weakness, muscle rigidity, developmental delays, progressive loss of vision leading to blindness, convulsions, impaired swallowing, paralysis, and dementia. Children may become comatose. Most children with this form of MLD die by age 5. Children with the juvenile form of MLD (between 3-10 years of age) usually begin with impaired school performance, mental deterioration, and dementia and then develop symptoms similar to the infantile form but with slower progression. The adult form commonly begins after age 16 as a psychiatric disorder or progressive dementia. Adult-onset MLD progresses more slowly than the infantile form. Is there any treatment? There is no cure for MLD. Bone marrow transplantation may delay progression of the disease in some cases. Other treatment is symptomatic and supportive. What is the prognosis? The prognosis for MLD is poor. Most children with the infantile form die by age 5. The progression of symptoms in the juvenile and adult forms is slower and those affected may live a decade or more following diagnosis. What research is being done? The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health (NIH), conducts research on the lipid storage diseases in laboratories at the NIH and also supports additional research through grants to major medical institutions across the country. Select this link to view a list of studies currently seeking patients. Organizations The Arc of the United States 1010 Wayne Avenue Suite 650 Silver Spring, MD 20910 [email protected] http://www.thearc.org Tel: 301-565-3842 Fax: 301-565-3843 or -5342 Myelin Project 2136 Gallows Road Suite E Dunn Loring, VA 22027 [email protected] http://www.myelin.org Tel: 703-560-5400 800-869-3546 Fax: 703-560-0706 National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968 [email protected] http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 National Tay-Sachs and Allied Diseases Association 2001 Beacon Street Suite 204 Brighton, MA 02135 [email protected] http://www.ntsad.org Tel: 617-277-4463 800-90-NTSAD (906-8723) Fax: 617-277-0134 United Leukodystrophy Foundation 2304 Highland Drive Sycamore, IL 60178 [email protected] http://www.ulf.org Tel: 815-895-3211 800-728-5483 Fax: 815-895-2432 You'll be in my thoughts and prayers, Regards, Raylene‚ô•
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Abijah Originally Answered: Possibility of treatment for Metachromatic Leucodystropy by Homeopathic medicines?
Dear Mom of Angels, This site has a great deal of information and links to other sites. I am looking for clinical trials and will update you accordingly. Just email me so I can contact you. I have a terminal disease with no cure either. Its pulmonary hypertension or high blood pressure in my lungs. Prognosis: Sure death by slow suffocation. So, I know the pain you're in. Here is the info I found: What is Metachromatic Leukodystrophy? Metachromatic leukodystrophy (MLD) is one of a group of genetic disorders called the leukodystrophies. These diseases impair the growth or development of the myelin sheath, the fatty covering that acts as an insulator around nerve fibers. Myelin, which lends its color to the white matter of the brain, is a complex substance made up of at least 10 different enzymes. The leukodystrophies are caused by genetic defects in how myelin produces or metabolizes these enzymes. Each of the leukodystrophies is the result of a defect in the gene that controls one (and only one) of the enzymes. MLD is caused by a deficiency of the enzyme arylsulfatase A. MLD is one of several lipid storage diseases, which result in the toxic buildup of fatty materials (lipids) in cells in the nervous system, liver, and kidneys. There are three forms of MLD: late infantile, juvenile, and adult. In the late infantile form, which is the most common MLD, affected children have difficulty walking after the first year of life. Symptoms include muscle wasting and weakness, muscle rigidity, developmental delays, progressive loss of vision leading to blindness, convulsions, impaired swallowing, paralysis, and dementia. Children may become comatose. Most children with this form of MLD die by age 5. Children with the juvenile form of MLD (between 3-10 years of age) usually begin with impaired school performance, mental deterioration, and dementia and then develop symptoms similar to the infantile form but with slower progression. The adult form commonly begins after age 16 as a psychiatric disorder or progressive dementia. Adult-onset MLD progresses more slowly than the infantile form. Is there any treatment? There is no cure for MLD. Bone marrow transplantation may delay progression of the disease in some cases. Other treatment is symptomatic and supportive. What is the prognosis? The prognosis for MLD is poor. Most children with the infantile form die by age 5. The progression of symptoms in the juvenile and adult forms is slower and those affected may live a decade or more following diagnosis. What research is being done? The National Institute of Neurological Disorders and Stroke (NINDS), a part of the National Institutes of Health (NIH), conducts research on the lipid storage diseases in laboratories at the NIH and also supports additional research through grants to major medical institutions across the country. Select this link to view a list of studies currently seeking patients. Organizations The Arc of the United States 1010 Wayne Avenue Suite 650 Silver Spring, MD 20910 [email protected] http://www.thearc.org Tel: 301-565-3842 Fax: 301-565-3843 or -5342 Myelin Project 2136 Gallows Road Suite E Dunn Loring, VA 22027 [email protected] http://www.myelin.org Tel: 703-560-5400 800-869-3546 Fax: 703-560-0706 National Organization for Rare Disorders (NORD) P.O. Box 1968 (55 Kenosia Avenue) Danbury, CT 06813-1968 [email protected] http://www.rarediseases.org Tel: 203-744-0100 Voice Mail 800-999-NORD (6673) Fax: 203-798-2291 National Tay-Sachs and Allied Diseases Association 2001 Beacon Street Suite 204 Brighton, MA 02135 [email protected] http://www.ntsad.org Tel: 617-277-4463 800-90-NTSAD (906-8723) Fax: 617-277-0134 United Leukodystrophy Foundation 2304 Highland Drive Sycamore, IL 60178 [email protected] http://www.ulf.org Tel: 815-895-3211 800-728-5483 Fax: 815-895-2432 You'll be in my thoughts and prayers, Regards, Raylene‚ô•
Abijah Originally Answered: Possibility of treatment for Metachromatic Leucodystropy by Homeopathic medicines?
Did any of your girls have those shots?...they have been known to cause all kinds of problems, long after birth just when you think they are okay...I would research any shots they had..you may want to find an attorney to help you recover costs for their care now and in the future .God bless and good luck...especially shots with mercury, or steroid shots early in life.

Silvia Silvia
Did any of your girls have those shots?...they have been known to cause all kinds of problems, long after birth just when you think they are okay...I would research any shots they had..you may want to find an attorney to help you recover costs for their care now and in the future .God bless and good luck...especially shots with mercury, or steroid shots early in life.
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Silvia Originally Answered: Does ayurvedas medicines has any effect on the disease process?
There are two varieties of oils prescribed by Ayurvedic sciences for Leucoderma. 1. Marichyadi tel 2. Brihan Marichyadi tel. Both of them are for external application. They work well not only for leucoderma but also heal Eczima, Scabies and also Ring-worms. Psoriasis is also gets cured by these oils. Sl.no.1 is used in initial stage and Sl.No2 which is stronger is used when the disease is identified late or is existing for a longer period. I am not aware of any latest research but the medicenes are being used successfully since centuries. Along with the external application of above mentioned oils, the Ayurvedic doctor will also prescribe few other medicines to be taken in the form of Liquids, Powders and Tablets depending upon the health condition of the patient, the cause of the problem and filling up the loop-holes of the human immunity system.

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